"We went to the doctor after he was born, and I kept telling him something was wrong. He didn't sleep. They thought I was being kind of an anxious mom, and we went back and forth," Rhett's mother, Shannon Lamb, said. "Finally, they [were] starting to realize now that he really doesn't sleep at all. But we've had a lot of different diagnoses and nobody really knows."
His sleep deprivation caused made him very irritable.
"That's going to have a great impact on his behavior during the day -- his irritability, his ability to eat -- and I'm sure it also impacted the parents tremendously," said Marie Savard, an ABC News medical consultant.
Rhett is awake nearly 24 hours a day, and his condition has baffled his parents and doctors for years. They took clock shifts watching his every sleep-deprived mood to determine what ailed the young boy.
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